View Full Version : Crohn's disease
VTS_86
17th September 2008, 07:41
I have been suffering from this for nearly 9 years now. I have been having a very hard time with it recently. Just wondering if anyone else had this or knows someone that has it and how they deal with it. I don't really talk to people about it as not everyone understands. My girlfriend and mates try to help as much as possible but it's still hard.
craig180
17th September 2008, 07:42
What is it mate?
don55
17th September 2008, 07:45
http://en.wikipedia.org/wiki/Crohn's_disease
Jamie
17th September 2008, 07:45
Irital bowels syndrome isnt it?
don55
17th September 2008, 07:46
It may affect any part of the gastrointestinal tract from mouth to anus
sounds like a porno i have :D
craig180
17th September 2008, 07:48
Sounds pretty harsh to be honest. 9 years though??? Can it cure itself or is there a cure?
Jamie
17th September 2008, 07:49
No cure 180 just things to ease it a little
trcygrdn
17th September 2008, 10:20
One of my friends has crohn's and as you probably know there are good days and bad. She's always been quite open and talkative about it. The more people know about it the easier it is for them to understand what she's going through. She's found that educating people about it has helped her.....and she always gets to pick the resturant when we go out! :)
xx
joemcevoy
17th September 2008, 10:23
My girlfriend was diagnosed with this at the start of the summer and its been pretty hard on the both of us. Shes spent most of the summer in hospital and dropped to 5/6 stone from being sick so much and not being able to eat. Medication didnt work for her either so she ended up back in hospital and now theyve put her on new meds.
Can't be cured and its gay because its not a registered illness so its not paid for on the NHS. so my girlfriend has to pay £1200 a year for injection. Not very fair when there is people out there smoking and eating their way to death and getting free treatment for it.
I sypathise for you mate, its not nice but i can't offer you any advice. My girlfriend and I are trying to figure out whats the best things for her at the moment ourselfs
kenny
17th September 2008, 11:02
my mum has had it for about 18 years. i learned to grow up so quickly because of it.
VtsTom
17th September 2008, 11:51
Had it 11 years. 3 opps to have parts of my colon removed, 2 opps to remove scar tissue/blockages.
Been off work for just over a year now with my entire lower bowl infected. Their trying a drug called Infliximab, seems to be holding it at bay. If it dont work i have to have my entire lower bowl removed and a ilostomy bag.
Best advise is to get a hobby that you can do that having bad guts dont effect. Mine is tinker with cars and when i do feel upto it im down the beach with my kite. However nothing beats a back road thrash with a bit of music
VTS_86
17th September 2008, 13:10
What is it mate?
Well it's similar to IBS:
Read the link that was posted if you want to know more
http://en.wikipedia.org/wiki/Crohn's_disease
VTS_86
17th September 2008, 13:10
Irital bowels syndrome isnt it?
Similar...
VTS_86
17th September 2008, 13:15
Sounds pretty harsh to be honest. 9 years though??? Can it cure itself or is there a cure?
Yeah coming up for 9 years now.
No cure at all. Just loads or pills and injections to try and get it under control. Recently been into hospital for 8 days for tests / scans. MRI scan was a little strange. Taking about 40 pills a day to lead a normal life. Steroids and Morphine are the two good things that came out of being in hospital.
VTS_86
17th September 2008, 13:16
One of my friends has crohn's and as you probably know there are good days and bad. She's always been quite open and talkative about it. The more people know about it the easier it is for them to understand what she's going through. She's found that educating people about it has helped her.....and she always gets to pick the resturant when we go out! :)
xx
Yeah there a certain foods that I can't eat and other things like curry and spicy food that sets it off.
VTS_86
17th September 2008, 13:27
My girlfriend was diagnosed with this at the start of the summer and its been pretty hard on the both of us. Shes spent most of the summer in hospital and dropped to 5/6 stone from being sick so much and not being able to eat. Medication didnt work for her either so she ended up back in hospital and now theyve put her on new meds.
Can't be cured and its gay because its not a registered illness so its not paid for on the NHS. so my girlfriend has to pay £1200 a year for injection. Not very fair when there is people out there smoking and eating their way to death and getting free treatment for it.
I sypathise for you mate, its not nice but i can't offer you any advice. My girlfriend and I are trying to figure out whats the best things for her at the moment ourselfs
I get all my treatment on the NHS. When I first found out I had it I was like 5 stone and was really ill. Couldn't eat and being sick all the time. Had very bad pains 24hrs a day 7 days a week. Missed my last 2 years of school due to it.
Been in hospital every year nearly since I was diagnosed. Had an operation at Southampton hospital and had my ilemum removed. This is the bit that joins the small intestine to the large. Dure to not having that bit anymore I have to have B12 injections every 3 months as my body won't produce it anymore from having that part removed.
http://en.wikipedia.org/wiki/Ileum
Had several colonoscopy's done as this is the only way the doctor can really tell what is going on. Trust me they are not nice.
http://en.wikipedia.org/wiki/Colonoscopy
On some need meds now - Infliximab which is about £3000 a time, but that is on the NHS.
http://en.wikipedia.org/wiki/Remicade
If that don't work too well then on to one more - methotrexate
http://en.wikipedia.org/wiki/Methotrexate
If all else fails then it's a colostomy bag for me which I really don't want.
http://en.wikipedia.org/wiki/Colostomy
VTS_86
17th September 2008, 13:28
Had it 11 years. 3 opps to have parts of my colon removed, 2 opps to remove scar tissue/blockages.
Been off work for just over a year now with my entire lower bowl infected. Their trying a drug called Infliximab, seems to be holding it at bay. If it dont work i have to have my entire lower bowl removed and a ilostomy bag.
Best advise is to get a hobby that you can do that having bad guts dont effect. Mine is tinker with cars and when i do feel upto it im down the beach with my kite. However nothing beats a back road thrash with a bit of music
I do feel sorry for you as I know how your feeling. Infliximab ain't really doing it for me at the moment.
kenny
17th September 2008, 13:35
my mum was given the choic ef the bag but she declined it as she didnt want to live like that for the rest of her life. all the drugs that the doctors want to give to her she cant take as has a bad reaction to them, some steroids help but she will never lead a normal life so i know what your going thru.
chin up mate :y:
saxo_ron
17th September 2008, 18:56
VTS86 I had ulcerative colitis but was very ill with it and ahd to have my colonremoved and had a colostomy bag for 3 months before it was reversed. Im still nowhere near as well as I was prior to having ulcerative colitis but aqm 100% better than when I was ill. if you ever wanna chat about this privately just pm me bud
VTS_86
17th September 2008, 19:21
VTS86 I had ulcerative colitis but was very ill with it and ahd to have my colonremoved and had a colostomy bag for 3 months before it was reversed. Im still nowhere near as well as I was prior to having ulcerative colitis but aqm 100% better than when I was ill. if you ever wanna chat about this privately just pm me bud
Nice to have someone to talk to about it.
Cheers
flee123
17th September 2008, 19:53
Sounds terrible mate. Dont know too much about it, wil read the link yu posted though, really sympathise for you mind.
VTS_86
17th September 2008, 21:09
Sounds terrible mate. Dont know too much about it, wil read the link yu posted though, really sympathise for you mind.
Cheers mate you dont have to read it as there is quite a lot of reading.....
Tupps
17th September 2008, 21:14
Jesus sounds harsh mate
Can you develop this at any point of your life?
VTS_86
17th September 2008, 21:35
Jesus sounds harsh mate
Can you develop this at any point of your life?
Yeah pretty much...
PhoenixSaxo
17th September 2008, 21:38
My Brother had something silmular to this when he was a child, We went through alot of the treatment. In the end he has had a gasto something or other, i cant spell it properly but he has a tube going into his right hand side which he has to use to 'flush' himself through has he cannot do it himself.
VTS_86
17th September 2008, 21:53
My Brother had something silmular to this when he was a child, We went through alot of the treatment. In the end he has had a gasto something or other, i cant spell it properly but he has a tube going into his right hand side which he has to use to 'flush' himself through has he cannot do it himself.
oh shit that ain't nice. Feel sorry for him....
Sophia_Bush
17th September 2008, 22:12
dude that is horrible dunno how you feel but hey like others need someone random to talk to chuck pm over.
joemcevoy
17th September 2008, 22:24
Cheerz for the link mate. My girlfriend was on tablets, I forget the name of them right now. accacol? (sp?) and steriods and calcium and pain killers. The list goes on.
Breakfast - 10 tablets
Lunch - 8 tablets
Dinner - 6 tablets
Bedtime - 5 tablets
That seriously can not be good for the body organs.
She has now been put on the the infliximab and like you that seems to be working a bit for her. Again she spent 24 hours a day 7 days a week curcled up in a ball at 5 stone being sick not eating anything and looking like pure shite. My summers been fairly shit and its killed me to have to sit in a hospital every day and be told when i can and cannot see my girlfriend. Or to have to sit outside and hear her scream when theyre putting in another injection for the 20th time that day. Ive never seen bruises like it on her arms from them trying to find veins etc.
I hope it doesnt come to her having to get a bag or anything. She hates people knowing about it because she just wants everything to be normal and be a normal person but she can't if people are fussing over her and shes not well. They definatley said that it was not fully on the NHS and that she could recieve funding for it but she would have to pay for her perscriptions and for part of her infliximab. She is applying to some government scheme though for help.
I may not know how it feels to have the thing, but i certaining know how it feels to be around someone whos suffering from it on a daily bases so if your looking a chat mate then do drop me a line. I may come to you myself if i need a chat
Joe
VtsTom
17th September 2008, 22:29
Joe, you can get pre-pay perscriptions, i pay £99 a year and that covers EVERY perscription i get.
They dont tend to offer infliximab freely, its usualy the last resort before a bag opp just because of the cost involved.
Your missus sounds like she's having a bit of a rough time with it. Not much you can do tbh, which sucks but just be cool and im sure she will apreciate it
joemcevoy
17th September 2008, 22:44
Joe, you can get pre-pay perscriptions, i pay £99 a year and that covers EVERY perscription i get.
They dont tend to offer infliximab freely, its usualy the last resort before a bag opp just because of the cost involved.
Your missus sounds like she's having a bit of a rough time with it. Not much you can do tbh, which sucks but just be cool and im sure she will apreciate it
cheers mate ill let her know. Mainly because its new to me and her family so everything that happens is a new thing to deal with and so we have to take it slowly and sometimes it just doesnt seem fair to watch someone sit in pain. Yea i hate not being able to do anything. On the plus side she gets loads of food which i get to eat.
frankie
17th September 2008, 22:52
that sounds savagee..........
can it just dissapear, like it randomly appears?
VtsTom
17th September 2008, 22:53
Lol theres allways an upside
Get her folks to have a read of this.
http://www.ppa.org.uk/ppa/ppc_intro.htm
joemcevoy
17th September 2008, 23:00
The Authority's PPC Issue Office is responsible for issuing PPCs to people resident in England only, on behalf of the Department of Health.
Don't think it can be got over here although i will get them to have a look and have them check it out. Im from N.I by the way so im guessing things may be slightly different over here.
joemcevoy
17th September 2008, 23:01
that sounds savagee..........
can it just dissapear, like it randomly appears?
yep it can come and go whenever it feels like it. Can be really bad, or jsut bad or if it really wants it could get you a trip to the hospital. Can't be cured, can be controlled but only to a certain extent
VtsTom
17th September 2008, 23:01
Ah... shitter. Worth a punt though, i worked out, in the last year i should have spent £1400 on meds alone, fook that
joemcevoy
17th September 2008, 23:03
Ah... shitter. Worth a punt though, i worked out, in the last year i should have spent £1400 on meds alone, fook that
shit me mate, thats harsh and to say that i cracked up when i had to spend £15quid on perscriptions ha. Everything will be worth a try to see if there is any benefits we can get to help but at the moment its just good old positivity
VtsTom
17th September 2008, 23:06
Yep, best advice is to stick to boring bland foods and eat at constant times. Its stupid, if i dont eat before 7pm im in agony. Makes going out a pain but when you consider the alternative it makes sense.
I pretty much live on tuna sarnys for lunch and some sort of chicken pasta for dinner. Cant go wrong
joemcevoy
17th September 2008, 23:16
My girlfriend lives on potatoes, potatoes and more potatoes. She doesnt eat meat anyway which works out ok. so it generally chicken and potatoes or fish and potatoes. I will have to say to her about eating at good times. On the up side shes eating breakfast lunch and dinner rather than no breakfast, a snack and then late dinner
demon_dan
17th September 2008, 23:35
My mates dads got colitus (sp) and he was really ill, couldn't leave the house or anything unless he knew there were toilets there etc. My mate was really affected by it, most of his childhood they never did much as a family, like never went for days out or anything coz even travelling to places was a bit of a nightmare. About 6 months ago his dad had a bag fitted and he's like a different bloke, they can go out and everything and he can eat pretty much what he wants tho obviously he's still careful but I think that's probably out of habit and also getting his body adjusted to being able to eat normally again. It's going to be reversed soon and hopefully everything should have healed etc and he'll be able to have a better quality of life.
djrem
17th September 2008, 23:40
i worked with someone who had it.
He stared work then was off for 2 weeks.
They sacked him in the end as he neer declared it.
The little time i worked with him, it seemed to be horrible condition.
Hope everything turns out better e-pal x
VTS_86
18th September 2008, 08:31
Cheerz for the link mate. My girlfriend was on tablets, I forget the name of them right now. accacol? (sp?) and steriods and calcium and pain killers. The list goes on.
Breakfast - 10 tablets
Lunch - 8 tablets
Dinner - 6 tablets
Bedtime - 5 tablets
That seriously can not be good for the body organs.
She has now been put on the the infliximab and like you that seems to be working a bit for her. Again she spent 24 hours a day 7 days a week curcled up in a ball at 5 stone being sick not eating anything and looking like pure shite. My summers been fairly shit and its killed me to have to sit in a hospital every day and be told when i can and cannot see my girlfriend. Or to have to sit outside and hear her scream when theyre putting in another injection for the 20th time that day. Ive never seen bruises like it on her arms from them trying to find veins etc.
I hope it doesnt come to her having to get a bag or anything. She hates people knowing about it because she just wants everything to be normal and be a normal person but she can't if people are fussing over her and shes not well. They definatley said that it was not fully on the NHS and that she could recieve funding for it but she would have to pay for her perscriptions and for part of her infliximab. She is applying to some government scheme though for help.
I may not know how it feels to have the thing, but i certaining know how it feels to be around someone whos suffering from it on a daily bases so if your looking a chat mate then do drop me a line. I may come to you myself if i need a chat
Joe
I'm at Poole Hospital and the infliximab is on NHS there. Shame that she has to pay for it as it costs a bomb.
Breakfast - 21 tablets
Lunch / Dinner - 8 tablets
Bedtime - 10 tablets
Thats my daily intake at the moment. I don't mind injections or anything like that. Just let them place it wherever they want to. The thing I hate is the constant pain.
It as hard for my girlfriend to see me in pain. The visiting times in hospital were shit. 4-6 & 7-9 I think. If she wants someone to talk to or even you then feel free.
VTS_86
18th September 2008, 08:33
dude that is horrible dunno how you feel but hey like others need someone random to talk to chuck pm over.
Cheers for the support. Nice to know there are people out there that want to listen. May want to pick your brain at some stage about a possible VTS turbo conversion if thats ok. Not really well enough to worry about it at this stage, just brought the engine.
VTS_86
18th September 2008, 08:50
cheers mate ill let her know. Mainly because its new to me and her family so everything that happens is a new thing to deal with and so we have to take it slowly and sometimes it just doesnt seem fair to watch someone sit in pain. Yea i hate not being able to do anything. On the plus side she gets loads of food which i get to eat.
Hospital food is rank... Not my cup of tea at all.
VTS_86
18th September 2008, 08:51
that sounds savagee..........
can it just dissapear, like it randomly appears?
It never disappears. It's for life.
VTS_86
18th September 2008, 08:59
yep it can come and go whenever it feels like it. Can be really bad, or jsut bad or if it really wants it could get you a trip to the hospital. Can't be cured, can be controlled but only to a certain extent
It never goes. It calms down and you go into remission where your Crohn's isn't active. I am still trying t o get to that point. Year 9 and still trying.
You should get remission for a few years but this varies on each person.
VTS_86
18th September 2008, 09:13
My girlfriend lives on potatoes, potatoes and more potatoes. She doesnt eat meat anyway which works out ok. so it generally chicken and potatoes or fish and potatoes. I will have to say to her about eating at good times. On the up side shes eating breakfast lunch and dinner rather than no breakfast, a snack and then late dinner
Potatoes FTW.... At least she can live of chips. Get your ass down McDonalds and get some large fries... lol
joemcevoy
18th September 2008, 09:58
Potatoes FTW.... At least she can live of chips. Get your ass down McDonalds and get some large fries... lol
yea Mc'Ds is good stuff. Eww the hospital food was rank i never touched it, everytime i smelt it when i went to visit her i was near sick. But all the chocolate that people bring up for her and to her house is good stuff.
That amount of tablets must be doin some serious damage to your insides. Im guessing your on a drip also if your in hospital? They gave my gf Morphine for one day in the hospital and she was great, really relaxed and all happy. Then they stopped it that nite and the next day she was miserable again.
VtsTom
18th September 2008, 09:59
Pethidine ftw!!
VTS_86
18th September 2008, 11:08
yea Mc'Ds is good stuff. Eww the hospital food was rank i never touched it, everytime i smelt it when i went to visit her i was near sick. But all the chocolate that people bring up for her and to her house is good stuff.
That amount of tablets must be doin some serious damage to your insides. Im guessing your on a drip also if your in hospital? They gave my gf Morphine for one day in the hospital and she was great, really relaxed and all happy. Then they stopped it that nite and the next day she was miserable again.
Well I use to take ibuprofen and I took some much for the pain that it was ripping my stomach to shreds. Morphine is the best stuff I have. I was out of my face last time I had it and called my mates djflipsaxo for a bit of a chat. Can't really remember what was said as I was out of my face.
I was on a Morphine drip / pain control unit. Basically had it dripped into me 24/7 and pressed the button for bit hit. Got the dose wrong so my usual 24/7 supply was a big hit and when I pressed the button I was away with the fairies. Was on the drip for for 2weeks when I had my op in Southampton. That was pretty much the best feeling I have ever had.
VtsTom
18th September 2008, 11:35
Ibuprofen causes inflamation and bleeding of the bowl. NEVER take it if you have crohns
VTS_86
18th September 2008, 11:51
Ibuprofen causes inflamation and bleeding of the bowl. NEVER take it if you have crohns
I know that now. This was in the early days....
lil_mizzy_richardson
18th September 2008, 12:59
it's a real hard thing to deal knowing you are goign to wake up in pain and go to sleep in pain (most of the time) & the people you love dont know how it feels for you, it effects the people who care alot they dont like to see the one thye love in pain and there is harly anythign they can do.......
VTS_86
18th September 2008, 13:07
it's a real hard thing to deal knowing you are goign to wake up in pain and go to sleep in pain (most of the time) & the people you love dont know how it feels for you, it effects the people who care alot they dont like to see the one thye love in pain and there is harly anythign they can do.......
Oh hello Jenny... How are you then sweet heart.
lil_mizzy_richardson
18th September 2008, 13:14
Oh hello Jenny... How are you then sweet heart.
Hello im good thankyou & how are you?
VTS_86
18th September 2008, 14:05
Not bad... Thought we were at work helping Cox's or whatever he is. Not braking our new laptop are you.
lil_mizzy_richardson
18th September 2008, 14:09
no im not! yeah im back now all done
why are on about breaking it neva do do i
VTS_86
28th January 2009, 09:07
Thought I would update this thread. I know it's old but hey...
Been through the wars again. Went back to hospital. Thinking about the operation now as the drugs don't seem to be working. I have been given morphine to take home to keep me going while my doctor thinks of something new instead of the op.
djflipsaxo
28th January 2009, 09:15
i hope you start feeling better soon chris.
what you wanna do? go out sat when i finish work?
djrem
28th January 2009, 09:18
Chin up buddy.
Morphine is a strong drug, don't over do it.
If the operation suggests a more comfortable solution then it may be inevitable.
From the information I can find from BUPA, it seems to be about the quality of life while suffering rather than any cure:
http://hcd2.bupa.co.uk/fact_sheets/html/crohns_disease.html
djflipsaxo
28th January 2009, 09:24
Chin up buddy.
Morphine is a strong drug, don't over do it.
If the operation suggests a more comfortable solution then it may be inevitable.
From the information I can find from BUPA, it seems to be about the quality of life while suffering rather than any cure:
http://hcd2.bupa.co.uk/fact_sheets/html/crohns_disease.html
i just read the link, it must be bloody awefull.
I have known chris for awhile now and hes suffered really badly. his gf seems supportive along with his family which i think is very important
VTS_86
28th January 2009, 12:11
i hope you start feeling better soon chris.
what you wanna do? go out sat when i finish work?
yeah I hope so too. What time do you finish work.
VTS_86
28th January 2009, 12:20
Chin up buddy.
Morphine is a strong drug, don't over do it.
If the operation suggests a more comfortable solution then it may be inevitable.
From the information I can find from BUPA, it seems to be about the quality of life while suffering rather than any cure:
http://hcd2.bupa.co.uk/fact_sheets/html/crohns_disease.html
Had my chin up for nearly 9years now. Morphine is excellent. Basically heroine but medically clean.
Unfortunately there is no cure so I will have to put up with it until I have the operation. Can't do the operation yet cause there are big complications that stand in my way.
VTS_86
28th January 2009, 12:22
i just read the link, it must be bloody awefull.
I have known chris for awhile now and hes suffered really badly. his gf seems supportive along with his family which i think is very important
I thought you knew alot about it. It is very hard for me but I have a great GF and family as well as good friend... djflip to help me out.
VtsTom
28th January 2009, 12:24
What opp might you have?
VTS_86
28th January 2009, 12:26
What opp might you have?
The bag.... :(
shieldy
28th January 2009, 12:28
My girlfriend was diagnosed with this at the start of the summer and its been pretty hard on the both of us. Shes spent most of the summer in hospital and dropped to 5/6 stone from being sick so much and not being able to eat. Medication didnt work for her either so she ended up back in hospital and now theyve put her on new meds.
Can't be cured and its gay because its not a registered illness so its not paid for on the NHS. so my girlfriend has to pay £1200 a year for injection. Not very fair when there is people out there smoking and eating their way to death and getting free treatment for it.
I sypathise for you mate, its not nice but i can't offer you any advice. My girlfriend and I are trying to figure out whats the best things for her at the moment ourselfs
thats why the NHS is fucked and us tax payers get raped for everything, if you pay the tax you should be intitled to what you need to live....
VtsTom
28th January 2009, 12:28
Shitter. What/how much bowl would they take out?
I had a temp one for 6 months while i was on infliximab, not too bad tbh. Not half as gross as you think
djflipsaxo
28th January 2009, 13:16
yeah I hope so too. What time do you finish work.
half 7ish but i dont think we can go out as phils mums test results have not come back clear, fancy coming here? get the wii out? lol
djflipsaxo
28th January 2009, 13:17
I thought you knew alot about it. It is very hard for me but I have a great GF and family as well as good friend... djflip to help me out.
no we dont know alot about it. i know the basics but not what it is throughly
djflipsaxo
28th January 2009, 13:18
I thought you knew alot about it. It is very hard for me but I have a great GF and family as well as good friend... djflip to help me out.
i think phil plans to do your car this weekend?? ill get him to call you. it wont be till his parents leave tonight
VTS_86
28th January 2009, 13:29
Shitter. What/how much bowl would they take out?
I had a temp one for 6 months while i was on infliximab, not too bad tbh. Not half as gross as you think
It would most likely be the whole bowl removed as it is too destroyed. They don't know how much of the small intestine is infected and they need to knwo before they can carry on.
One way is to swallow a camera which has a battery attached to it which records something like 8hours. Problem with that is where I have had my last operation to remove some of the intestine, it is too narrow for the camera to pass through resulting in a rush operation to get it cut out.
Other option is to be cut open and have a cut in the top of the small intestine and feed a camera all the way through to see how much is infected.
Bad points to the above are, if the intestine doesn't heal where they cut then it will leak and I can get mass infection which results in very bad things.
VTS_86
28th January 2009, 13:30
half 7ish but i dont think we can go out as phils mums test results have not come back clear, fancy coming here? get the wii out? lol
So his mum is all clear.
Have you got a wii then or bring mine.
VTS_86
28th January 2009, 13:34
i think phil plans to do your car this weekend?? ill get him to call you. it wont be till his parents leave tonight
Where are they leaving too. They off on hol. What is Phil doing to my car.
There are a couple of things I wanted done and to book in some stuff.
VtsTom
28th January 2009, 13:37
Did you say you tried Infliximab and it didnt help? There is other drugs available like it but much harsher. Im now on Humira. Self injection every 2 weeks. Pretty sure im having a Illestomy bag later in year. Better than death though buddy
VTS_86
28th January 2009, 14:09
Did you say you tried Infliximab and it didnt help? There is other drugs available like it but much harsher. Im now on Humira. Self injection every 2 weeks. Pretty sure im having a Illestomy bag later in year. Better than death though buddy
I have had 3 gos in the Infliximab. I am also on Methotrexate. They are also thinking of trying Adalimumab or Humira. Looks like the best option for me is the Illestomy bag too.
djflipsaxo
28th January 2009, 14:12
So his mum is all clear.
Have you got a wii then or bring mine.
no shes not, the results come back unclear again so shes off for more mamograms and bits next week
VtsTom
28th January 2009, 14:12
Look on the posotive side. If you do have a bag, they sew your arse up... wont ever get bum raped
djflipsaxo
28th January 2009, 14:13
Where are they leaving too. They off on hol. What is Phil doing to my car.
There are a couple of things I wanted done and to book in some stuff.
lol no there popping over to chat about phils hgv lisense,his mum, etc etc.
then ill get to to call you lol
yeah he said he plans to this we?
djflipsaxo
28th January 2009, 14:13
Look on the posotive side. If you do have a bag, they sew your arse up... wont ever get bum raped
i recon he would rather be bum rapped than have this done!
VTS_86
28th January 2009, 14:15
no shes not, the results come back unclear again so shes off for more mamograms and bits next week
Oh I see. That ain't too good. :n:
djflipsaxo
28th January 2009, 14:19
Oh I see. That ain't too good. :n:
no, its quite worrying actually.
also means we have no baby sitter as we dont want to burden them. shes pretty woried, as we all are.
im sure you understand how we all feel!
VTS_86
28th January 2009, 14:20
Look on the posotive side. If you do have a bag, they sew your arse up... wont ever get bum raped
The funny thing is I have actually thought about that. :y:
Can't fart either which ain't really the best if you know what I mean.
The good plus side is that the toilet at work is crap and gets blocked really easily so I won't have that problem anymore.
djflipsaxo
28th January 2009, 14:24
The funny thing is I have actually thought about that. :y:
Can't fart either which ain't really the best if you know what I mean.
The good plus side is that the toilet at work is crap and gets blocked really easily so I won't have that problem anymore.
lol damn you stink at times :P:P
VTS_86
28th January 2009, 14:45
lol no there popping over to chat about phils hgv lisense,his mum, etc etc.
then ill get to to call you lol
yeah he said he plans to this we?
Whats up with his HGV license. Get him to call me that will be cool.
What is this about... yeah he said he plans to this we?
VTS_86
28th January 2009, 14:46
i recon he would rather be bum rapped than have this done!
lol... :clapping:
Don't knock it till you try it. :homme:
VTS_86
28th January 2009, 14:46
no, its quite worrying actually.
also means we have no baby sitter as we dont want to burden them. shes pretty woried, as we all are.
im sure you understand how we all feel!
That is not good. She has been doing really well recently I thought.
VTS_86
28th January 2009, 14:47
lol damn you stink at times :P:P
Yeah I know... That's how I roll.
Oh what about Phil. He is worse than me.
djflipsaxo
28th January 2009, 16:09
Whats up with his HGV license. Get him to call me that will be cool.
hes getting one sorted as his dad has always promised he would do it for him
What is this about... yeah he said he plans to this we?
weekend lol
That is not good. She has been doing really well recently I thought.
no shes gone downhill, but she had her 1 year checkup and it didnt go well
Yeah I know... That's how I roll.
Oh what about Phil. He is worse than me.
lol men....
VTS_86
28th January 2009, 16:47
What is he doing to my car this weekend anyway.
djflipsaxo
28th January 2009, 17:24
What is he doing to my car this weekend anyway.
dunno lol
Jamesaxo
28th January 2009, 17:32
my best friend got Crohn's disease! back in 08 she had mutiple operations and was in hospital for a long while! i havent really spoke to her properly about it as it seems a sensitive subject so ive just been there for her as a mate!
did go to hospital though when she had her op and she was in a bad way but shes on the mend now and back in work and enjoying herself but her modds can be up and down but iaccept that!
she's on some kind of injection which she got to do every two weeks!
i hope things start to get better for you mate and dont let it get you down too much
VTS_86
29th January 2009, 15:55
That's to good to hear. Hope that she gets better soon.
Zach
29th January 2009, 16:10
Ah, i wondered how this was going!
I remember reading this thread back in september, i still have trouble getting myhead around it.
Really feel for you guys, but glad to see there is options!
Much respect.
VTS_86
29th January 2009, 17:48
Ah, i wondered how this was going!
I remember reading this thread back in september, i still have trouble getting myhead around it.
Really feel for you guys, but glad to see there is options!
Much respect.
Cheers... :y:
Did you go up to the French Car Show with djflipsaxo if so I was the other person with him sat in the back. I was gonna take my car up but I had just recently come out of hospital and had some treatment which therefore I was unable to drive.
VTS_86
26th February 2009, 14:24
Out of hospital now after 2 and a half weeks. Had my operation. I managed to avoid the bag but next time I won't be so luck but hopefully it won't come to that.
I and a right hemi colectomy basically had the right hand side of my colon removed.
Grant
26th February 2009, 14:38
Out of hospital now after 2 and a half weeks. Had my operation. I managed to avoid the bag but next time I won't be so luck but hopefully it won't come to that.
I and a right hemi colectomy basically had the right hand side of my colon removed.
Hopefully not, glad you doing ok mate :y:
joemcevoy
26th February 2009, 14:46
Hope your feeling ok mate. Its definatley a crap situation.
As id previously psoted way back in sept about my girlfriend having it, shes also doing much better now. Shes reduced her tablets from 18 a day to about 8 and her bodys starting to return to normal. Still has the odd mood swing and days she feels like crap but hopefully all is going well.
Taking her to london in 2 weeks but she has to get her inflixmab before she goes so hopefully she will be ok to go.
VtsTom
26th February 2009, 15:13
I had a colectomy when i was 12, sent me into remission for 4 years almost instantly. Good luck buddy
vtr_cheshire
26th February 2009, 15:15
The funny thing is I have actually thought about that. :y:
Can't fart either which ain't really the best if you know what I mean.
The good plus side is that the toilet at work is crap and gets blocked really easily so I won't have that problem anymore.
Not good mate, on a light hearted note, what if you caused the pressure in the bag to get too high...
Nuclear smelling explosion..
VtsTom
26th February 2009, 15:16
They have little valves to let trapped air escape, just dont be too close when that happens
vtr_cheshire
26th February 2009, 15:28
thats an added bonus, you can aim and time your farts perfectly...
put an end to the "turn and shoot!"
adam19
26th February 2009, 18:50
what achually causes this ??
sounds painful :(
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